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Posts Tagged ‘cancer’

Hullo!

It’s been a while since my last post eh? Well, Happy Lebaran to all of you who celebrated Idul Fitri — Lebaran didn’t go through Bintaro (my Bintaro that is), since I’m in S.I.N.G.A.P.O.R.E. Yep — I’ve been here for quite a while. Starting in early October, for 4 days, then go back to work in Jakarta for 3 days and off to Singapore again, this time for two weeks. Waks..so boring what? That’s singlish, if you know what I mean.

So, here goes. There are lots of things I want to share with you about me being in Singapore. First, let me tell you why I am here for such a long time — especially since its not in great sale season (there’s no sale in Singapore in Lebaran season tho). Hubby is applying for a drug trial — he got CML you know. So, how come we can come here? Because of SOCIAL NETWORKING! See….i told you that technology can definitely help us.

Nuff said — basically a social networking link, called AsianCMLSupportGroup helped hubby to apply for a drug trial, since his current medication is not working as it should be. I am a member of this support group mailing list since a year ago, rite after hubby is diagnosed. A nice and warm welcome note from the moderator warmed my heart last year. She even offered to get hubby to meet her hubby’s doctor in SGH. I said thanks, because hubby is already had an appointment at NUH. Then, I literally forgot about the mailing list, although the daily digest crowd my yahoo inbox everyday.

When hubby is in need of a new medication, a friend sent an email to the moderator, who replied back in 24 hours. And I open another discussion with her and here we are now. A friend whom I never saw face to face helped hubby to get in touch with doctors in SGH and talk to the doctors in SGH to consider hubby. I can not imagine how it can be done if there is no online social networking. See…it works and it should not be banned!

I’ve been here for almost 10 days now, I’ve never saw her…she is so busy with requests and emails and helping others in the region as well. A fellow CML patient even said that she (i prefer not to put her name here) probably has 48 hours in one day and use almost all of her time responding to emails. That might be true.

Another thing that amaze me was that before we went to Singapore, we communicated with the doctor and nurses and all paramedics through emails. It is another form of online consultation I think. And it is surely helping, considering that we must pay almost 3 million rupiah for one trip to Singapore (excluding lodging and shopping that is) — imagine if we have to travel back and forth on a weekly basis.  Aaaah…the power of the internet is so very true…

And here we are now….by the power of social networking, we search, find and communicate with people with the same interest, we were assisted by people that we haven’t met, and we found new friends, new horizon and new hope.

How I wish corporations and our government realize the power of social networking. It can make us a greater nation — i hope this is not wishful thinking….

buabuay! 

  

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